Archive for the MND category.

Emma On Real Radio

posted by Ross (Admin)
file under Emma, Family, MND

Real Radio

My daughter; Emma Goodman was on Real Radio last weekend.

I have uploaded an mp3 of her appearance here, beware it is currently 30Mb in size; I will shortly edit down a smaller version.

New Training Partner

posted by Ross (Admin)

Sarah Goodman, my 13 year old daughter decided to join me on my run tonight.

She did great, she did’nt slow me down any. I am keeping track of my training in a Google spreadsheet here.

We are in training for our upcoming fundraising events.

See the widgets on the right if you would like to donate.

More Media Exposure

posted by Ross (Admin)

Pick Me Up Logo

A while back my daughter; Emma Goodman, was interviewed by a researcher from The Press Association who was interested in her story.

She has just called to say that Emma will be featured in the Spring Special edition of the Pick Me Up magazine that goes on sale this Friday.

I have just picked up my copy: 14th march edition, page 27.

Fundraising

posted by Ross (Admin)

Money

In case you have not noticed I have created a  fundraising page.

I will be doing sponsored events for the Scottish MND Association, Childrens Hospice Association Scotland (CHAS) and for Marie Curie Cancer Care.

Have a look here and please give generously !

Ambulance At Our House

posted by Ross (Admin)


Just some rumour control for anyone who may have seen the ambulance at our house on Saturday night.
Emma took some chest pains but she is better now.
Read the rest of this entry »

Rachel House

posted by Ross (Admin)

Last weekend we spent a fantastic time at Rachel House in Kinross Fife.

We had a very relaxing time, and got the chance to take some nice photos in the garden too !
You can also see the photos at the newly created CHAS Flickr Group.

Starting To Feel Like Christmas!

posted by Ross (Admin)

I don’t know if it’s the sudden cold snap, but I am starting to feel more Christmassy !

To help get into the mood it’s time to get the cards done, or buy next years if you are super organised!

Check out these cards (PDF Catalogue) from the Scottish Motor Neurone Disease Association.

Emma’s Progress

posted by Ross (Admin)

Not a lot of updates on Emma’s progress recently so here we go.

Emma’s power in her arms and wrists has deteriorated severely over the last few weeks.
This we have seen coming  for a little while, we have been helping her to eat for six months or so.
The biggest impact this is having is that she can no longer use the keyboard on her laptop: so her online presence on Bebo and MSN has been brought to a premature end.
She has already been assessed for alternative input tools such as an eye controlled system. This happened when she was last at Rachel House so I never got a chance to find out more.

More worryingly the muscles in her throat are starting to weaken so she has started to choke on her food occasionally.

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